I thought I would be interesting to show everyone what our house is like, all because of the tiny trach.
These pictures of of her room. Just completely jam packed with supplies.
This is her closet. We have the dresser packed with supplies that we use daily. The rest of the boxes are things we need to change out weekly.
The dresser is where we do all her trach and g-tube cares. It's also where is dress her like a sweet little doll. ❤️
Sorry this one is blurry! More supplies that don't fit in the closet!
Syringes!!!(I seriously could have rolled around in these, I was so excited to get them!)
This is our bedroom, where Amelia sleeps. She usually sleeps in her swing, but occasionally sleeps in her crib. The iv pole holds the feeding pump(she doesn't use anymore, yay!), and the humidifier system, and water. The box like machine on the ground is the air compressor. It pumps air thru the humidifier. It's also loud as all get out and it makes our room super hot. We had to put a window unit in our room, even though we have central air. The little machine on top of the air compressor is the pulse ox, it has to be hooked up to her while she sleeps.
Here's Amelia, all snuggled in and ready for sleep. we still swaddle her, because it's easier with the tubing and all. Once her trach comes out, we will wean the swaddle! Wish us luck! Haha
It doesn't look THAT bad, it's just a ton of clutter.
Here is Amelia's "go bag"!
It's pretty, huh? I hate it. Hahah
The bag is beautiful, but you should see us trying to get out the door with this darn thing and everything else that we need.
This is everything that goes in the bag.
Suction machine, a million suction catheders, extra g-tube button and extension, diapers(duh, right? Nope. I have definitely left the house without them), saline bullets, trach nose, extra trachs(size smaller and actual size), sterile water, manual suction catheder(used with mouth), Baggie with a bunch of trach ties and stuff used for trach cares), a ambu-bag in the awful instance that we would need to do CPR, and a pulse ox machine.
I realized after the photo was taken that her nebulizer wasn't in the picture. We NEED that. Seriously. It's a crap ton of stuff.
This is her bag all packed and ready to go. The black bag is her oxygen. We have to have it when we leave the house, just in case. The back of her closet is full of them.
This last picture doesn't include her bag of meds and milk.
This is the living room.
Same set up, but with a pack n play and a ton of baby toys! My house a.l.w.a.y.s looks like this! We try to keep it up, really we do, but it's hard!!
Y'all this is my life! I wouldn't trade it. I love my girls and am so blessed to have them. I would live in a ditch with them...but not really😉
Thanks for all the prayers and love. Amelia is due to get a bronch on the 8th of July. We are hoping to pull the trach the next day!! Jesus take the wheel, I'm so nervous!!
Love y'all!
Kelly
