Follow our journey

Follow our journey

Wednesday, February 19, 2014

The next steps

Since Amelia got her trach, she has been doing so well! Her doctors wanted to be able to send her home. We were starting to talking about in home nurses and all the equipment that we would need at home. They were thinking that in a couple weeks we may be ready. Truth be told, that scared me a lot. Of course I want to be at home with her, but not at the expense of her life. 

All of her specialists got together for a meeting and wanted to talk about pros and cons to sending her home. They decided that it's the safest option to keep her at the hospital. SO the tentative plan is...
March 10 she will have her vocal cords looked at again, to see if the function has come back at all. It's not likely, though, but it doesn't hurt to look. 
March 15 she will go to the cath lab to have a heart cath done. They do this for all babies that are about to have the Glenn done. 
April 1 she is scheduled for her Glenn. This is huge. We have an end date. This could change, but its on the books and we are excited to have a plan.  Maybe we will be home by mid April!! Once she has the Glenn, the chances of anything going wrong, drops dramatically. Right now, she has that shunt in her heart, but the Glenn will get that out and we won't have to worry about it clotting again. 

I couldn't be happier, honestly. It does suck to have to spend the first four months of Amelia's life in a hospital, but she has life and for that, and I am so happy. David and I were talking about how, one day, this will just be a memory. I can't wait! 





Prayer requests:
*David and I are starting to have a really hard time being apart. It's not fun, having to say goodbye all the time and only being able to see each other one day out of the week. 

*I miss Emma a lot. She is learning so much, so quickly, and I am missing a lot of it. 

*Amelia is doing so well! PRAISE GOD! She is growing and doing cute, baby things.  We need her to continue to grow for her next surgery! 

Thank you, everyone, for your prayers. We love and appreciate all of you, so much!

Love, 
Kelly

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