Follow our journey

Follow our journey

Sunday, March 23, 2014

Ready hearts

My Amelia is already 3 1/2 months old! I cannot believe it. It has gone by so fast, yet seems like the longest 3 months of my life. She is the happiest baby, and you would never know, looking at her face, that  her heart is failing her. 
Her doctors are so happy with how well she is growing and how happy she is. She has been a rockstar ever since she got the trach put in. Who knew you needed to breathe, to thrive?! She is starting to show signs of her heart needing a fixin'. Nothing too crazy, but with these babies, the slightest change can be a big deal. She started throwing up decent amounts and is looking a little more blue than usual. Her SATS have been dipping and her heart rate is hanging out a little higher these days. Her doctors say this is the best way to go into the Glenn. It's so good that her O2 levels aren't dangerously low, forcing them to operate on her. It's good that she is starting to show signs, so close to surgery. The last thing we wanted was to rush her into the Glenn. 

Her cath was supposed to be last Monday, but the cardiologist who does the caths, went and got himself pneumonia. Poor guy was hospitalized for like 5 days. They have decided to wait until 2 days before surgery to cath her. 

Her surgery is one week from Wednesday. One week. I am absolutely ready to bring my baby home, but not ready to send her back into the OR. I am believing everything will be okay. I also want to pretend it isn't happening. In the OR, they will do a bronchoscopy to check her vocal cords. It the most perfect of worlds, she would come back from the OR without the trach. That most likely will not happen, but it would certainly be wonderful. 

So this next week, we ready our hearts for another surgery. We trust God. 
Ready our hearts, God!!!


Prayer requests:
We need prayers for the upcoming surgery. We knows it's best and will put her in a better spot, but it's so hard to imagine another recovery. 

Vocal cords!! We want one of them to move, move, move, so she can have her trach taken out right away. 

Of course, Amelia. Please pray she doesn't start to feel too sick before her surgery.


Amelia has been at the hospital for 100 days, so the nurses brought cupcakes. Very delicious. 

Thank you all so much for the prayers!! 
Love, 
Kelly



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