Amelia's Heart : Homeward bound

We have been cleared to go home soon!

Excuse me while I scream happy screams,

YYYAAAAAAAAAAAAAAAAAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Amelia is off the monitors at the hospital now, for the first time in her entire little life! They cannot discharge on Fridays, and Monday we are getting every appointment set up for her, and then TUESDAY is the day! I have been nervous about announcing the big day, just in case it fell thru, but decided to take a chance. We had to take a short road trip with Amelia, so that we got an idea of what it felt like, packing up everything and driving somewhere. It was wonderful! Amelia was so amazed by everything she saw. She had never been outside before, so this was A LOT for for! She did really well! We didn't want to bring her back.

We wanted to have nursing lined up, but it may take a while. There was a little bit of confusion about whether or not insurance would pay for nursing if we went home without it, but that has been cleared up. My wonderful mother in law applied at the nursing agency that has our case, and there is one other nurse who can pick up a couple days a week, we just have to wait for the state to approve the plan of care. That can take 20 days, and we weren't going to wait 20 days for the state. No sir.

So here we are, about to go home! It's a good thing we just bought a big house, because girlfriend has a lot of equipment! David has been renovating a room down stairs for Amelia's things and we have a room upstairs for her too! I don't know what we will do with ourselves once she gets her trach out and we don't have all the extra stuff to do!

Going home is exciting, but it will be a huge adjustment for everyone. For those of you who live in Wisconsin and will want to come visit, you will need to give us some time. We want to share Amelia with everyone, but like I said, it's going to take some time. Also, we still don't want her to catch anything. So don't take it personal if we decline any visitors for a while!

Prayer requests:

Grace! We will need grace for these next couple of weeks while we adjust to being at home, completely in charge of everything.

Amelia's health! We just want this to go really well, and one huge thing would be that we need her stay healthy.

Praise God with us! Amelia has come so far! One of our very favorite np's said "it's hard to believe that this is the same baby who crashed and was on ECMO" the fact that Amelia is alive, is incredible, but that we get to bring her home....makes me speechless. I am so grateful to God for Amelia.